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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Equipment

Here is a list of equipment supplier websites that families have found useful.  Click on the links below to view other sections.



Joncare | Print |

Joncare 0-18 offers a whole range of postural and mobility products for children with special needs.

 
Liberator Ltd. | Print |

Liberator Ltd is a world-leading supplier of products, training and support for communication, inclusion and independence.

 
OTdirect | Print |

OTdirect is an independent site for Occupational Therapists, OT Assistants and OT students, produced by OTs in their spare time. It aims to provide not only links to useful resources on the web, but study notes, practice updates and training listings.This is a not-for-profit site, with no paid advertising, commercial interests or outside funding — just links to organisations that deserve support.

 
Rifton | Print |

Rifton manufactures walking frames,standing frames, specialist chairs, adaptive tricycles, wheelchair desks, bath chairs and toileting aids.

 
Seenin | Print |

Practical stylish garments to aid daily living for adults and children with disabilities

 
Leckey | Print |

Positioning equipment for children with special needs.

 
Meru | Print |

Meru design and custom make specialist equipment for use at home, school, college, in hospital or at play when no ready made soloution exists to meet a child or young persons needs.

 
Rackety´s | Print |

Special needs clothing for indoors and outdoors including swimwear.

 
Rompa | Print |

Sensory toys, furniture and more

 
Special Needs Kids | Print |

Special Needs Kids is an information and shopping directory for parents and carers.

 
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Disclaimer
Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
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