Joubert Syndrome in the UK

Welcome to JSUK | Print |


Joubert Syndrome in the UK
We also welcome Related Cerebellar Disorders


Welcome to JSUK an organisation for the parents and carers of children affected by Joubert Syndrome a rare genetic disorder.



Please explore the site by clicking on the buttons to the side.

You can learn more about us and our aims in - About JSUK.

Newly Diagnosed offers a starting point for Parents and Carers.

Read personal stories and view our children's photo's in the Gallery.

We have some useful information put together by parents and
various professionals in our Hints and Tips section.

Check the Notice Board for updates

Forum - public section available to view, private section for members only.


Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
JSUK does not endorse any products nor can we be held responsible for any external links and their content.
Copyright 2010 - 2011  WWW.JSUK.ORG