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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Therapy Equipment & Materials | Print |

You may not always want to purchase Specialist Therapy Equipment and this has to be a personal choice.

Below we have listed some simple and cheaper alternatives for you to consider.

If you have found any that are not listed here and feel they may be of interest to others please feel free to share your finds with us via This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Therapy Roll

Try Soft Furnishings and Bedding stores such as IKEA

Gym Ball

Various sports shops and chemists

Stool With Wheels

Furniture Stores such as IKEA or buy a low second hand stool and attatch some wheels yourself

Dycem

This is available in rolls, cut off to desired length and make a non-slip mat, an alternative is to purchase non slip mats/rolls for caravans.

 

 

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