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Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
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Joubert Syndrome UK

 



 

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Hi Glad you found us, looking forward to chatting more. The Facebook group is much more active than the Forum as you will have noticed! Faith 11-Aug-11 14:56:45
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