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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Occupational / Physical Therapy | Print |

Occupational / Physical Therapy

Provided by your local health authority.

They provide an individual programme for you to work on at home with your child.

They assess equipment needs and adaptations for your home.

They can refer you to a Speech Therapist.

 

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