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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Inchworm Shoes | Print |

Built right into INCHworm shoes is the iFit technology. The iFit technology allows you to GROW the size of the shoe with a simple push of the button, to provide your children with better fitting shoes that last up to three sizes longer. Inchworm shoes grow in half size increments. Just push the button on the side, and pull the toe of the shoe to adjust into the next size.
 

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