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Joubert Syndrome UK



Using A Roll | Print |

Ideas for using a Roll

Try to ensure the roll is the correct height so that when in a sitting position your child's feet reach the floor with hips and knees at right angles.

Any movement exercises must be done at a slow and controlled pace to be effective.

Never leave your child unattended on the Roll.


Place the roll up against a sofa for extra stability and whilst your child gains confidence sitting on the roll. This can also help give a physical reminder to your child and help them become aware of where their body is in space. You may need to start this off in seconds and build up into minutes.
Whilst your child is sitting on the roll play with toys.
If your child can sit confidently on the roll up against a sofa, try moving the roll slowly forwards and then back a little, have their back tap firmly on the sofa as you move the roll backwards so as to help increase awareness of where their body is. You could sing a song at the same time so as to keep rhythm and have fun! 
When your child is sitting confidently on the roll encourage them to lean forwards whilst playing with toys or offer toys so they have to lean forward a little to reach them.
Encourage your child to use their arms at either side of the roll to learn to support and balance themselves whilst slowly moving the roll forwards and back. If your child dislikes touching the roll you could sing a song such as 'pat a cake' and tap their hands alternately and firmly on the roll.
Whilst sitting on the roll your child could stamp their feet and clap their hands to the song 'If your happy and you know it'
Aim to move the roll away from the sofa as soon as is appropriate and continue having fun singing and playing.   You do not want your child learning to rely on the back support.
Sit your child astride the roll with their legs at either side of the roll, this will encourage them to use their legs to keep their balance.
With your child sitting astride the roll encourage them to move forwards and backwards and from side to side, you could gently and slowly move the roll for them side to side. Keep it fun you could be riding a horse or rowing a boat!

Children with JS often dislike being on their tummy and this can prove to be a challenging position to work on.

Use the roll and lay your child across it on their tummy and place toys of special interest to your child in front of them. Try a moving, musical toy as there is less work for them to do whilst learning to tolerate this position.
With your child laying across the roll try placing a tray rather than a bowl of water in front of them and encourage them to splash in the water or you could place floating toys in the water as they are easily moved.
Encourage your child to raise their head whilst lying over the roll by moving toys of interest slowly upwards. Any small movement in raising the head in this position is an achievement even if it comes through protest! 
With your child lying over the roll move the roll slowly backwards and forwards so your child,s hands momentarily leave the floor and then hands go back onto the floor with palms flat. As you move the roll forwards try to ensure that your child receives a firm feeling through their arms and hands by moving the roll forward slightly more than is needed rather than getting hands to just touch the floor. You may need to guide your child,s arms at their shoulders and help their hands. Again singing a song may help to keep a rhythm and have fun.
Lay your child across the roll and place yourself behind your child and have your own legs at either side of theirs. Hold and move your child towards you so as they come back and up into a kneeling position. This is a good way to end a session lying over the roll.
As in the picture above encourage your child to learn to kneel and use the roll to lean on whilst supporting them around the hips or under the arms, this will work on developing their balance and control around the hips.    
Work on trying to remove your support from their hips or under the arms as they learn to support themselves.

Just try to have fun in this position!


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