Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK




JSUK website, support, telephone, meetings and newsletters are funded entirely from private donations and fundraising via parents, friends and family members.

Although we are at the moment an unregistered Charity, we are still a charity governed by a constitution.

Committee members and volunteers give their time freely and we would welcome anyone who would like to join us.

If you would like to make a donation you can send a cheque to:

50 Sheepwalk Lane
WF10 3QG

If you think that you can help in any other way please get in touch via

Email:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Tel:  07530254743

Buy At | Print |

Why not try the Buy at website for gift ideas, for each purchase made JSUK will receive a donation.  Click on the logo for further information.

Yellow Moon | Print |

Shopping at YELLOW MOON will benefit JSUK
For every order made JSUK will receive up to 25% cash-back.
IMPORTANT If placing an order please use the source code WJS03975 to ensure the cash-back is attributed to JSUK.


Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
JSUK does not endorse any products nor can we be held responsible for any external links and their content.
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