Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



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14-Feb-15 04:32:38
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What Jake has been up to.

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Nice wheels Jake. :cool: :cool: :cool: Now that I am 11...
02-Apr-11 20:24:05
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