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Joubert Syndrome UK



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My name is Jake, I am 10 years old and I have Jouberts.
Mum thought it would be a good idea to have my own blog so all my family and friends can keep up to date with me.
For those who dont know me I have 6 brothers and I have quite a busy life mostly.
I love watching my  DVD's when I'm relaxing at home and sometimes I like to watch them in fastforward, it makes me laugh. I have a special switch and box so that I can operate the remote control by myself as my fingers and hands don't have much control. I will tell you more about my special remote later.
My favourite film is Shrek he is so funny! I also like Dumbo and I very much like my wiggles music DVD's.
I go to a special school, which I realy enjoy. Sometimes I have sleepovers at a special home with my freinds, it's great fun when I go there.
I have other interest's too, cooking, gardening and nature walks, mum is realy good at wheeling me through mud and over bumps. Sometimes we pretend that we are on a motor bike when we do our nature walks, we even do wheelies! Wheelies make me laugh a lot!
I have to tell you one more thing that I like to do before I finish my introduction - wrestling and play fighting with my brothers and dad.
Because I am getting bigger now I have learn't how to hook my arm around their necks and get them in a headlock and then I drool on their hair, hahaha, they dont like that so they give up.
I have lots more to tell, so keep tuning in!

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