Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Welcome to the new JSUK Forum.  Some of the  areas are for members only, if you would like to join, please click HERE or LOGIN.

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Posting is available to members only, to join the site read the post HERE (Click the images to expand).

1 From thr Forum page click the "New Topic" button in the top right corner.
2 When the "Select Forum" page appears use the drop down box to choose the most appropriate forum for your post and click "Submit".
3 You will then be presented with the main posting page.
4 Choose the image you would like for the post (it's more fun than important).
5 Fill in the "Subject" with something specific if possible.
6 Fill in the Description with a bit more detail to differentiate between similar Posts.
7 Fill in the main body of the Post, once you are happy with it click "Submit".

It is possible to customise your post with different text sizes, text colours smilies  cool , images http://www.jsuk.org/components/com_agora/img/members/1/mini_Joubert-Foundation.jpg and even video, but we will cover these later.  You can of course experiment with them and use the "Preview" button to check it is OK before Posting.

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