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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Welcome to the new JSUK Forum.  Some of the  areas are for members only, if you would like to join, please click HERE or LOGIN.

Joining the site

Joining the site

I you would like to join in the chat on our forum please follow the instructions below. (Click on the images to expand).

1 Open the website in a new window so you can refer the instructions if necessary by clicking HERE..
2 Go to the "Visitor Book" page on the Menu.
http://www.jsuk.org/components/com_agora/img/members/1/mini_Main-Menu.jpg
3 Click "Create Account" in the "Site Member Login" box.
http://www.jsuk.org/components/com_agora/img/members/1/mini_Create-an-Account.jpg
4 Fill in the Registration Form and Submit.
http://www.jsuk.org/components/com_agora/img/members/1/mini_Reg-form.jpg
5 You will be sent an Email to the address you used to register, follow the instructions on the email to complete the process.
6 Return to the "Visitor Book" page and fill in the "Site Member login" details using the "Username" and "Password" you used to register and click "login".
http://www.jsuk.org/components/com_agora/img/members/1/mini_Hi.jpg

You can now visit the whole forum, please read the RULES before posting and enjoy the site.

Your first Post could be in the "Introduce Yourself" section to let the other members know a little about you.

Chris
JSUK Web Admin

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Disclaimer
Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
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