Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Welcome to the new JSUK Forum.  Some of the  areas are for members only, if you would like to join, please click HERE or LOGIN.

Forum rules

Forum Rules

We reserve the right to reject/edit/delete posts without notice which:
Are racist, sexist, homophobic, sexually explicit, abusive or otherwise objectionable Contain excessive bad language or other language likely to offend.
Encourage unlawful activity or condone such activity, break the law, including breach of copyright, defamation of character and impersonation of a person or company.
Advertise products and services for profit. 
Are being repeatedly posted (known as "spam")
Include contact details such as phone numbers, postal or e-mail addresses

Board Info

Board Stats:
Total Topics:
Total Polls:
Total Posts:
User Info:
Total Users:
Newest User:
Members Online:
Guests Online:

There are no members online

Forum Legend:

 New Sticky

Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
JSUK does not endorse any products nor can we be held responsible for any external links and their content.
Copyright 2010 - 2015  WWW.JSUK.ORG