Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Contact JSUK

You can get in touch with us on the contact details below.

07530254743, you can also send a text with your information if you would like JSUK to contact you.

Address: 50 Sheepwalk Lane



WF10 3QG

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