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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Turn2us | Print |

Turn2us is a new charity offering a groundbreaking online service to help the millions of people in need in the UK. For the first time, people can access information on all benefits and grants available to them from both statutory and voluntary organisations, at no cost. In many cases, applications for support can be made directly from the website.

 

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