Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Benefits & Services

An alphabetical list of all Benefits and Services, click the links below to see each catagory.

Sure Start | Print |

Sure Start

A government programme that helps to bring together early education, services and support for families.

T.V. License | Print |

T.V. License

If anyone in the household is registered blind then you are entitled to a 50% reduction on your license.

Contact T.V. Licensing, Telephone: 0870 241 6468


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