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Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


 

Joubert Syndrome UK

 



 

Reduction In Council Tax | Print |
Reduction in Council Tax
You may be eligible for a reduction in your council tax if your chilld uses their wheelchair or specialist seating indoors or has had a bathroom/kitchen adapted for their needs.
Contact your Local Council to request a form to fill in.
Click on the Directgov link for more information.
 

Disclaimer
Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
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