Our Syndrome. Your Information.

Our best hope for finding new treatments and raising awareness is your participation in JS-LIFE, the JSRDF patient-centered registry.

Whether you are affected, a caregiver, or related to someone who is or was affected, your information* could be the key. Please take a few moments to answer a few questions today.
*only one survey is necessary per affected individual


Joubert Syndrome UK



Carers Allowance | Print |
Carers Allowance
You may be able to get Carers Allowance if you are aged 16 or over and spend at least 35 hours a week caring for a person who recieves the Disability Living Allownce at the middle or higher rate for personal care.
You cannot get Carers Allowance if you are in full time education of 21 hours or more or if you earn more than £95 after certain deductions like income tax have been made.
Carers allowance is £50.55 per week
Telephone: 01253 856 123
Click on the Directgov link for more information.

Information contained on this website is not intended to replace information you have received from Doctors or other Health Professionals.
You should always consult with a Medical Professional for medical advice.
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